Central Florida's Independent Jewish Voice

Articles written by Carla Steckman


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  • Focusing on joy and life in the face of Tay-Sachs

    Carla Steckman|Nov 3, 2017

    (Kveller via JTA)—My final hike with Talia was an act of defiance and love. In July, I held her, my 23-month-old daughter, in a front carrier with extra support to prevent her head from lolling side to side. I pressed her tiny body firmly against mine in the hope that my body heat would comfort and warm her increasingly cold body. She was as weak as I had ever seen her, her body limp—a result of her brain’s inability to function. She was 10 days away from death, yet there we were summiting another peak together. To outsiders, we were a typical...